Those affected by ‘genetic conditions’ may not understand its cause or the implications it could have on their wider family.

The Community Genetics team works across East Lancashire, BwD and Oldham. 

The service was introduced to raise awareness of genetics within the community. 

These families care for children or adults who have multiple complex needs due to a genetic condition and are sometimes unaware of the help available to them. 

Anne, Wahida and Arjmund visit families who have been referred to the service in their own home to encourage and support them to access the Counselling service. 

Naz Kahn, is the Genetics Counsellor leading the team and is based at St Mary’s Hospital in Manchester but operates clinics in Royal Blackburn Hospital. 

Anne Edington, Senior Community Genetics Coordinator based at Home-Start Pendle and Ribble Valley said, “It’s really great working with families, especially when they get their diagnosis and realise that the issue is genetic and not their fault.  

Often parents blame themselves if something is not quite right.  
When we look at family trees, parents are able to make the link when there are several children affected in the wider family, especially if some of that family lives abroad.”  The service is free and confidential and meetings are arranged at times suitable for families. 

The diverse team are able to offer appropriate language support, map out a family tree and make families aware of other support services available to them.

How can I be referred?
If there is a confirmed or suspected genetic condition in you or your family (or your partner if you are pregnant or considering a pregnancy), you may wish to request a referral to Genetics. 
You can request a referral via your GP, doctor, nurse, midwife or other health care professional. 
They will refer you directly to clinical genetics if they feel it is appropriate. It is helpful to provide as much detail as possible for the referral. 

You may be referred to if you:
• Have or are at risk of a genetic condition yourself 
• Have a child with a suspected or confirmed genetic condition 
• Are a carrier or potential carrier of a genetic condition
• Have a family history of a genetic condition
• Are pregnant with a family history of a genetic condition 
• Have had unexpected changes found on a scan or test during pregnancy
• Want to discuss your reproductive options if there is a genetic condition in the family

For further information (Blackburn with Darwen) Wahida  – 07850 488197; For East Lancashire contact Anne – 07715 651504